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Need-to-Know Information for the Teacher

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Marfan syndrome is a life-threatening genetic disorder that causes some physical problems that can interfere with a student’s ability to perform in the classroom without modifications. These physical limitations cause many students living with the disorder to feel isolated and alone. We hope this guide enables educators to:

  • Understand the basics of Marfan syndrome and its impact on a student

  • Learn recommended educational and classroom accomodations to ensure the best learning environment for students with Marfan syndrome

  • Create a supportive classroom environment for students with Marfan syndrome

  • Identify ways to incorporate Marfan syndrome and/or genetic diversity into lesson plans

Many students with Marfan syndrome suffer from low self-esteem because they look different and are unable to participate in many of the activities of their peers, reinforcing intense feelings of isolation. Physical limitations usually mean that physical education requirements need to be modified.