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Help us raise awareness of Marfan syndrome and related disorders in the schools!


The Benefits

Better understanding of these conditions helps your child in school and increases the opportunity for early diagnosis in other students.

The Challenge

To reach as many schools as possible with information about Marfan syndrome and related disorders.

All You Need to Do

  • Schedule a meeting with your child's teacher(s) and school nurse
  • Print out our teacher and school nurse resource and bring them to your meeting(s)
  • Fill out the form below with the school's information

This challenge is not just for parents and guardians! Grandparents, aunts, uncles, family members, and friends can also take the challenge. And you can arrange meetings with teachers and school nurses at all schools, not just those where there is a child with a known diagnosis of Marfan syndrome or a related disorder.

Let’s reach every school in the country! When you provide us with the contact information of the school(s) you’ve reached, we’ll place a pin on this map so we can track our progress together. Our goal is for this map to be completely covered in pins. With your help, we can raise awareness in thousands of schools. Take the Adopt-A-School Victory Challenge today!

If you have any questions, please email us at connect@marfan.org.

My 13-year-old daughter faces questions and ridiculing remarks on a daily basis at school. Your resources help teachers and students alike to understand her better.

Michelle Taffara, South Africa

My wife met with the school nurse at the middle school my daughter will attend next year. Your school nurses resource really helped facilitate the conversation.
Brian Lynch, NJ

As a teacher and a person with Marfan syndrome I truly appreciate your school resources. They are amazing!
Alexandria Lorentz